Product Lead, Data Solutions

GeneDx (Nasdaq: WGS) delivers personalized and actionable health insights to inform diagnosis, direct treatment, and improve drug discovery. The company is uniquely positioned to accelerate the use of genomic and large-scale clinical information to enable precision medicine as the standard of care. GeneDx is at the forefront of transforming healthcare through its industry-leading exome and genome testing and interpretation services, fueled by the world’s largest, rare disease data sets. For more information, please visit www.genedx.com. 

 Summary 

At GeneDx, we are advancing precision medicine by harnessing the power of genomics and data science. As the Data Solutions Product Lead, you’ll be at the center of advancing InfinityTM, the largest rare disease dataset-including clinical, molecular, and real-world data-ensuring they are accessible, high-quality, and valuable for a range of users. These resources will support internal innovation in diagnostics and AI, while also enabling external partners in life sciences, research, and healthcare to unlock new insights. In this role, you will shape and deliver data solutions that set new standards for impact and utility in genomics, drug development and precision medicine. 

You will develop and execute a product strategy focused on building and curating high-quality regulatory-grade clinical, molecular, and real-world data assets across rare disease cohorts, ensuring GeneDx continues to grow and enrich Infinity. The strategy you develop will directly shape the roadmap for our GenAI Analytics platform and life sciences solutions. Your work will empower users to efficiently generate, manage, and extract insights from our data registry. You will collaborate closely with engineering, product, clinical strategy, medical affairs and R&D to define infrastructure and standards that elevate the usability, accessibility, and quality of these datasets. Job Responsibilities 

• Lead GeneDx Infinity’s Data Solutions initiatives-owning the full lifecycle from product strategy to execution, and ensuring our data assets, including RWD and RWE, meet evolving customer and business needs. 
• Drive the development and integration of real-world data and real-world evidence into GeneDx’s data products, expanding their value for research, clinical, and commercial applications. 
• Transform customer and partner feedback into actionable strategies that drive continuous improvement in data quality, usability, and value. 
• Perform in-depth product and data analysis to inform both immediate priorities and the long-term roadmap for data content, modeling, and standardization. 
• Manage clear and proactive communication with internal/external stakeholders regarding product vision, progress, and delivery timelines. 
• Develop and maintain a comprehensive roadmap for GeneDx Infinity’s data assets, clearly articulating the business and scientific value of our clinical, molecular, real-world data, and RWE resources. 
• Identify and address data quality requirements, championing programs that ensure GeneDx’s data assets are trusted, high-quality, and ready for both internal and external use. 

 People Manager 

• No 

 Education, Experience, and Skills 

• 8+ years of product management experience, including 5+ years building data/software products, ideally in healthcare or the life sciences. 
• Experience working with genomic data (e.g., VCFs, annotations, variant databases) and clinical data models (FHIR, EHRs, claims, phenotypic data). 
• Proven track record of developing and commercializing data assets or platforms for external use.  
• Experience with real world data, HEOR, healthcare informatics, data modeling, or AI-driven data enrichment.  
• Demonstrated ability to take data products from concept to launch, especially data assets that enable users to visualize, interpret and derive insight from complex clinical, molecular and real-world dataset. 
• Strong analytical thinking, with comfort making trade-offs between scientific accuracy, technical feasibility, and user value. 
• Strong analytical, communication, and stakeholder management skills paired with excellent execution and attention to detail. 
• Familiarity with data privacy, compliance, and contracting for external data assets.  
• A sense of ownership, humility, and mission-driven motivation to improve lives through better healthcare. 
• Bachelor's degree required; advanced degree (MBA, MPH, MS, PhD) or clinical training is a plus 

 Certificates, Licenses, Registrations 

• N/A 

 Work Environment 

• This is a fully remote position. The employee will work from a home office or other suitable remote location with reliable high-speed internet access. Work is performed in a climate-controlled environment using standard office equipment including computer, phone, and video conferencing tools. Your standard work schedule and hours will be established in collaboration with your leader and may be adjusted to align with evolving business needs. 

Physical Demands 

This is a sedentary role requiring prolonged periods of sitting while working at a computer. Physical demands include: 

• Sitting for extended periods (up to 8 hours per day) 
• Repetitive use of hands and fingers for typing and mouse operation 
• Visual acuity for reading computer screens and documents 
• Ability to communicate effectively via phone and video calls 
• Occasional lifting of up to 10 pounds (office supplies, equipment) 

Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions of this position. 

 Acknowledgements 

The above job description is not intended to be an all-inclusive list of duties and standards of the position.  Incumbents will follow any other instructions and perform any other related duties, as assigned by their supervisor.     

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